Thirteen Years
a Lyme Disease Warrior

Thirteen Years
a Lyme Disease Warrior

Eight years, 25 doctors, no diagnosis. Five infections missed. One immune system, shattered. Five years in treatment. Two years of IV and needles, daily. Forty medications, 20 supplements, 8 alternative therapies. One retirement plan, depleted. Thirteen years of life passing. Mostly recovered but mainly managing. This is Lyme Disease. This is my story.

February 20, 2016
Springing New Life

Up in the Grill 362/365 Friday I went for my first IV IG infusion treatment. Since it's a blood product and risky, the nurse has to monitor the patient's vitals and symptoms every 30 minutes. It's about 4-6 hour drip depending on how the patient tolerates it.

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February 13, 2016
Another Fallout of Lyme Disease

Early Cherry Blossoms -356/365 CVID, Common Variable Immunodeficiency. Another fallout from complications due to Lyme disease. When researchers say Lyme disease is AIDS-like, this is what they mean. Basically I don't make antibodies as a normal person.  Researchers don't know the exact cause, but think it's partly genetic and partly from opportunistic infectious disease. My […]

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February 1, 2016
Even Computers Get Lyme Disease

Even Computers get Lyme Disease - 344/365 "It's as if there is some bug so deep in your PC that no virus program can find or fix, and it gets carried over to each new PC you get," said MWD about my latest technology drama.

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January 23, 2016
Wine Goals

Wine Goals - 335/365 "My number one goal is to get my patients drinking again," said my Lyme doctor.

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January 11, 2016

Progress - 323/365 I didn't want to say anything for fear of jinxing myself, but yes, I'm back on the yoga mat. Over the last 3 years I've been on and off the mat, not able to maintain a consistent practice because mobility was just too painful. Last year, I gave up asana (moving practice) […]

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January 1, 2016
BLT Canapes : Happy New Year

BLT Canapes for Appetizer Night - 313/365 "What do you want for New Year's Eve dinner," I asked Mr. Wild Dingo. "BLT's," he replied. So I made these bad boys: BLT Canapes with basil and garlic mayonnaise. They are a bit tedious to make but super simple and oh so delicious! We tend to do […]

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December 9, 2015
Absence of Evidence

Absence of Evidence is not Evidence - 289/365 Each day I walk the forest trails in back of my house and I inevitably walk through 1 or 2 strands of errant spider webbing. It's impossible for anyone to see it, but I can feel it on my face or bare arms in the summer. No […]

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December 3, 2015
Unfathomable Boundaries

Leaf  - 281/365 Recently, I started calling my chronic illness Lyme-MSIDS, a named coined by Dr. Richard Horowitz who's treated thousands of Lyme patients successfully. Lyme-MSIDS stands for Lyme-Multi-System Infectious Disease Syndrome. The reason Lyme patients don't get better is because there are more things at play such as co-infections, immune dysfunction and multiple systems in the body, […]

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November 23, 2015
Slow Progress

First Slug of the season 273/365 This month has been all about slow progress. Some of the symptoms that returned, the lower body pain and feet pain, have slowly decreased. They're not gone but they're not as bad as they were. That's just how it rolls in treating Lyme disease. Sometimes you make huge gains and […]

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November 9, 2015

Non Sequiteur - 259/365 Lyme-MSIDS is the most depressing game of whack-a-mole ever. Goodbye migraines, fever, chills, POTS, dizziness, fainting and shortness of breath. Hello again lower body pain, numbness and soles of the feet pain. Getting difficult to walk. Bartonella, we meet again. You rat bastard.

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November 2, 2015

Paralyzed -  253/365 I walk by these dead Elms a few times per week. Though they're dead, the owner has yet to remove them as I've heard he's intended. The elms stand there, not living, but merely taking up space. Paralyzed.

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October 20, 2015
Some Other Beginning's End

"Every new beginning comes from some other beginning's end."  239/365 The lyric's from Semisonic's Closing Time were first spoken by first century Roman philosopher Seneca. Autum is the perfect time of year to reflect on how ending one path leads to embarking on another. New beginnings can't happen until we genuinely part with old ways.

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October 14, 2015
A Lymie's Daily Crack Habit

A Lymie's Daily Crack Habit - 233/365 For the last two weeks I've been on daily Intravenous Glutathione and Methyl B12 injections.   Don't worry, that big needle is only mixing the glutathione with saline. It goes directly into a peripheral catheter in my arm.  The B12 (the red stuff in the small needle), depending […]

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September 28, 2015
Lyme Brain Strikes Again

Foxtails in Black and White #2 of three - 218/365 Lyme Brain struck again! This time live on the Internet. Yesterday's photo was an accidental repeat. I meant to post a more recent photo of Mr. Wild Dingo and the dogs from our Sunday walk, but my Lyme brain chose the wrong photo.  Not that […]

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September 26, 2015
As the Lyme Brain Turns

Juno shares my sentiments on a bad Lyme-day.  214/365 Juno shares my sentiments exactly when I wake up, after having only 3 hours of sleep, with my heart racing like I'm at the start line of a bike race and a migraine brewing.  Thank dog and praise cheeses for my siberian husky who makes me smile […]

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September 15, 2015
Foggy Day Zen

Cold + Fog = Zen - 204/365 Monday we woke up to a cold, foggy day in the mountains. I couldn't have been happier. The sun and heat have been hell on my migraines. Cold dark days are always easier on me.  So, even though my body said 'no,' I pushed myself to go the […]

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September 7, 2015
Tall Fuzzy Things

197/365 Tall Fuzzy Things to take my mind off the Monday Bicillin shot in the keister. I suppose these things are some sort of grass.

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September 6, 2015
I Have No Business Trying to Be a Person

Sunset on Summit - 196/365 "I have no business trying to be a person," I said to Mr. Wild Dingo as I once again clumsily dropped another item for no reason. These are the weird conversations that Lyme brings up.

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September 3, 2015

The Lyme Disease Clusterf*ck -  193/365 26 months 33 Rx 22 oral herbs or enzymes 19 oral supplements 5 months Rx IM shots, daily 7 months Rx IV, daily 3 months of Rx Sub Q shots, daily Are we there yet?  This is the Lyme Disease Clusterf*ck. Am I better yet? I'm better than I was […]

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August 30, 2015

Orchard & Redwoods in Santa Cruz Mountains 188/365 Before I started treating Lyme disease, the dogs and I would walk along this road, Loma Prieta, (famous for the 1989 earthquake) for miles. We'd often make it up to some very steep mountain top vistas where we take in some amazing, breathtaking views.  There are a lot of orchards […]

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