Thirteen Years
a Lyme Disease Warrior

Thirteen Years
a Lyme Disease Warrior

Another Fallout of Lyme Disease

Reading Time: 2 minutes Early Cherry Blossoms -356/365 CVID, Common Variable Immunodeficiency. Another fallout from complications due to Lyme disease. When researchers say Lyme disease is AIDS-like, this is what they mean. Basically I don't make antibodies as a normal person.  Researchers don't know the exact cause, but think it's partly genetic and partly from opportunistic infectious disease. My […]

Read More
Even Computers Get Lyme Disease

Reading Time: 1 minute Even Computers get Lyme Disease - 344/365 "It's as if there is some bug so deep in your PC that no virus program can find or fix, and it gets carried over to each new PC you get," said MWD about my latest technology drama.

Read More
Wine Goals

Reading Time: 1 minute Wine Goals - 335/365 "My number one goal is to get my patients drinking again," said my Lyme doctor.

Read More
Progress

Reading Time: 3 minutes Progress - 323/365 I didn't want to say anything for fear of jinxing myself, but yes, I'm back on the yoga mat. Over the last 3 years I've been on and off the mat, not able to maintain a consistent practice because mobility was just too painful. Last year, I gave up asana (moving practice) […]

Read More
BLT Canapes : Happy New Year

Reading Time: 3 minutes BLT Canapes for Appetizer Night - 313/365 "What do you want for New Year's Eve dinner," I asked Mr. Wild Dingo. "BLT's," he replied. So I made these bad boys: BLT Canapes with basil and garlic mayonnaise. They are a bit tedious to make but super simple and oh so delicious! We tend to do […]

Read More
Absence of Evidence

Reading Time: 1 minute Absence of Evidence is not Evidence - 289/365 Each day I walk the forest trails in back of my house and I inevitably walk through 1 or 2 strands of errant spider webbing. It's impossible for anyone to see it, but I can feel it on my face or bare arms in the summer. No […]

Read More
Unfathomable Boundaries

Reading Time: 4 minutes Leaf  - 281/365 Recently, I started calling my chronic illness Lyme-MSIDS, a named coined by Dr. Richard Horowitz who's treated thousands of Lyme patients successfully. Lyme-MSIDS stands for Lyme-Multi-System Infectious Disease Syndrome. The reason Lyme patients don't get better is because there are more things at play such as co-infections, immune dysfunction and multiple systems in the body, […]

Read More
Slow Progress

Reading Time: 2 minutes First Slug of the season 273/365 This month has been all about slow progress. Some of the symptoms that returned, the lower body pain and feet pain, have slowly decreased. They're not gone but they're not as bad as they were. That's just how it rolls in treating Lyme disease. Sometimes you make huge gains and […]

Read More
Whack-a-Mole

Reading Time: 1 minute Non Sequiteur - 259/365 Lyme-MSIDS is the most depressing game of whack-a-mole ever. Goodbye migraines, fever, chills, POTS, dizziness, fainting and shortness of breath. Hello again lower body pain, numbness and soles of the feet pain. Getting difficult to walk. Bartonella, we meet again. You rat bastard.

Read More
Paralyzed

Reading Time: 1 minute Paralyzed -  253/365 I walk by these dead Elms a few times per week. Though they're dead, the owner has yet to remove them as I've heard he's intended. The elms stand there, not living, but merely taking up space. Paralyzed.

Read More
Some Other Beginning's End

Reading Time: 1 minute "Every new beginning comes from some other beginning's end."  239/365 The lyric's from Semisonic's Closing Time were first spoken by first century Roman philosopher Seneca. Autum is the perfect time of year to reflect on how ending one path leads to embarking on another. New beginnings can't happen until we genuinely part with old ways.

Read More
A Lymie's Daily Crack Habit

Reading Time: 3 minutes A Lymie's Daily Crack Habit - 233/365 For the last two weeks I've been on daily Intravenous Glutathione and Methyl B12 injections.   Don't worry, that big needle is only mixing the glutathione with saline. It goes directly into a peripheral catheter in my arm.  The B12 (the red stuff in the small needle), depending […]

Read More
Lyme Brain Strikes Again

Reading Time: 1 minute Foxtails in Black and White #2 of three - 218/365 Lyme Brain struck again! This time live on the Internet. Yesterday's photo was an accidental repeat. I meant to post a more recent photo of Mr. Wild Dingo and the dogs from our Sunday walk, but my Lyme brain chose the wrong photo.  Not that […]

Read More
As the Lyme Brain Turns

Reading Time: 2 minutes Juno shares my sentiments on a bad Lyme-day.  214/365 Juno shares my sentiments exactly when I wake up, after having only 3 hours of sleep, with my heart racing like I'm at the start line of a bike race and a migraine brewing.  Thank dog and praise cheeses for my siberian husky who makes me smile […]

Read More
Foggy Day Zen

Reading Time: 2 minutes Cold + Fog = Zen - 204/365 Monday we woke up to a cold, foggy day in the mountains. I couldn't have been happier. The sun and heat have been hell on my migraines. Cold dark days are always easier on me.  So, even though my body said 'no,' I pushed myself to go the […]

Read More
Tall Fuzzy Things

Reading Time: 1 minute 197/365 Tall Fuzzy Things to take my mind off the Monday Bicillin shot in the keister. I suppose these things are some sort of grass.

Read More
I Have No Business Trying to Be a Person

Reading Time: 1 minute Sunset on Summit - 196/365 "I have no business trying to be a person," I said to Mr. Wild Dingo as I once again clumsily dropped another item for no reason. These are the weird conversations that Lyme brings up.

Read More
Tallies

Reading Time: 1 minute The Lyme Disease Clusterf*ck -  193/365 26 months 33 Rx 22 oral herbs or enzymes 19 oral supplements 5 months Rx IM shots, daily 7 months Rx IV, daily 3 months of Rx Sub Q shots, daily Are we there yet?  This is the Lyme Disease Clusterf*ck. Am I better yet? I'm better than I was […]

Read More
Escape

Reading Time: 2 minutes Orchard & Redwoods in Santa Cruz Mountains 188/365 Before I started treating Lyme disease, the dogs and I would walk along this road, Loma Prieta, (famous for the 1989 earthquake) for miles. We'd often make it up to some very steep mountain top vistas where we take in some amazing, breathtaking views.  There are a lot of orchards […]

Read More
Hello Monday

Reading Time: 1 minute Hello Monday 183/365 I think this is a crocus flowering shrub. But I can't be sure. I do all my uncomfortable Lyme stuff on Monday's like, new IV peripheral lines or shots. This month I've been back on bicillin shots in the butt twice per week. It's a lot like getting a shot of elmers glue in […]

Read More

Eight years, 25 doctors, no diagnosis. Five infections, missed. One immune system, shattered. Forty medications and 20 herbs and supplements, consumed daily. Two years of IV and needles, daily. Eight alternative therapies. Five years in treatment. One retirement plan, depleted. Thirteen years of life passing. Eighty-percent recovered. Twenty percent nuts. This is Lyme Disease. This is my story.

Treat Jar

Like what you're reading? Buy the pups a bone!

$5.00
Processing ...
hand-o-up linkedin facebook pinterest youtube rss twitter instagram facebook-blank rss-blank linkedin-blank pinterest youtube twitter instagram