Thirteen Years
a Lyme Disease Warrior

Thirteen Years
a Lyme Disease Warrior

Eight years, 25 doctors, no diagnosis. Five infections missed. One immune system, shattered. Five years in treatment. Two years of IV and needles, daily. Forty medications, 20 supplements, 8 alternative therapies. One retirement plan, depleted. Thirteen years of life passing. Mostly recovered but mainly managing. This is Lyme Disease. This is my story.

August 24, 2015
Hello Monday

Hello Monday 183/365 I think this is a crocus flowering shrub. But I can't be sure. I do all my uncomfortable Lyme stuff on Monday's like, new IV peripheral lines or shots. This month I've been back on bicillin shots in the butt twice per week. It's a lot like getting a shot of elmers glue in […]

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August 20, 2015
The Lyme Disease Bill

A Foxtail Lymegraine 179/365 Yesterday's Lymegraine felt like a thousand foxtails stuck in my brain, in my cheekbones, ears and jaw, then lit on fire. But I still find joy in making photos like this. If you'd like to help people with Lyme disease, and can't donate to ILADS or another Lyme and Tick disease […]

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August 15, 2015
Accidental Magic

Accidental Magic 174/365 This is not one of my more well-received photos on Instagram. One person even commented "huh?" It was an accidental shot, but I liked it. It's also a great representation of what it's like to have Lyme brain, which has been a little bit more common these days. Things are foggy, unclear. I make […]

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July 19, 2015
Sunday Herxes

It's been a strange week. After a visit with my doctor, we are giving one last-ditch effort to get rid of the Babesia for good. It's been hanging on much longer than it should. We've been treating it since September of last year, which is a long time to treat this infection.  He doubled my dose […]

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July 16, 2015
On Fear and Courage

A reader wrote in recently in regards to fighting Lyme. She wrote, “I’m full of fear. I admire your courage and energy.” Energy? Really? Every day I have to drag myself out of bed and muster the energy to do the dog walk. That is usually all it will take to wipe me out. The […]

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July 3, 2015
Random Lyme Ramblings

It's been two weeks off the IV meds and one of the  strong oral meds for Babesia. I thought being off the IV meds would help me bounce back to my normal Lymie self, but I was wrong. I'm still rediculously exhausted and don't do much beyond walking the dogs. These past 10 years, July has […]

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June 27, 2015
Going Off Campus

I haven't been to the ocean in a while. I tried several times when I started treating Lyme, but the sun and the reflections off the water set off my neuro symptoms so badly that I've avoided it for about a year now. An odd thing about having Lyme disease is that you don't miss things […]

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June 19, 2015
Vacation

I used to count how many miles I could ride a bike, run or hike. Now I count how many pills I can get down each day. Being an athlete and a yogi prepared me for this. Two years ago to this day, I took my first antibiotic and began treatment for Lyme disease with […]

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June 16, 2015
Hard Truths

This month I marks two years since the beginning of my treatment for Lyme disease. I'm astonished how much the body can take. I just finished a six-week course of IV Daptomycin (Cubicin), a new drug being used for Lyme disease following a successful study done on drugs that help eradicate it completely. Words can't explain how thrashed […]

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June 12, 2015
Daisies, Not Damocles

I dodged a bullet yesterday. I had an ultrasound to re-check the DVT caused from a PICC line I had in March. The clot had run the length of my arm and part of my chest. It was resolved. As in: gone. Kaput. Vamos. My vascular doctor did not order the re-check. In fact, on […]

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June 10, 2015
Five Percent Day

Twenty Percent. That’s the maximum amount I can do of my typical yoga practice—on a good day. Today was a 5% day. And the cracker? He sensed that. He grounded and guided me through a painful practice. For a dog who rarely has 4 feet on the ground physically or mentally, Loki’s a damn good […]

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June 9, 2015
Something's Buggin' Me

Something's bugging me and it's not the fact that the bug in that photo is slighly out of focus. A few months ago, my brother of TravelMarx, had a bad flu or virus. Despite having a flu vaccination, his illness was out of the ordinary, symptoms were severe and hung on longer than usual so he went […]

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May 27, 2015
Push

"Why are you too tired, to make dinner" Mr. Wild Dingo asked. Sometimes he forgets it.

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May 26, 2015
No Walkies? Whaaa?

“What do you mean, ‘there will be no walkies today’ Mom?” Sorry, buddy. Today I spend most of the day at the doctor's doing my first infusion of the week then running to two pharmacies picking up my supplies, all with a big fat migraine from the first rush of the medication. I'd much rather […]

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May 23, 2015
Vertical

Cypress trees in Santa Cruz Mountains. I'm having one of those Lyme days where it is difficult to stay vertical.  You just never know when it will hit you so hard that you can't stand up for very long. PJs and Netflix binging: just what the doctor ordered!

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May 22, 2015
The Bite

Loki took a bite out of Lyme, long before it was ever a Lyme Disease Challenge! Here he is biting a toy spirochete. I pity the Spirochete that comes in contact with cracker or his George Clooney-chompers!  

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May 21, 2015
The Trifecta

Since it is Lyme Disease Awareness Month, Loki would like to do his part in educating on the challenges of treating Lyme disease. Borrelia Burgdorferi (Bb), the pathogen that causes Lyme disease, is both horrifying and fascinating in that it is designed to survive multiple environments and assaults.

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May 20, 2015
Nose Nopes

Phantosmia: an olfactory hallucination makes you detect smells that aren't really present in your environment.  It’s seen in people with Parkinsons disease, schizophrenia, Alzheimer’s and of course Lyme disease. It’s usually an unpleasant smell.  

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May 19, 2015
Letting Go

A macro view of the Red Bottlebrush tree. A very close visual representation of what it’s like living with Lyme disease. With Lyme, life becomes so focused and minute tossed around with a bit of chaos. Recovery becomes a full-time job with 100% focus. So much so, I had to let go of my old […]

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May 17, 2015
Rule Breaker

“Don’t shoot down on flowers,” say the experts.  Rule Breaker.

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