Thirteen Years
a Lyme Disease Warrior

Thirteen Years
a Lyme Disease Warrior

Lymegraines

Reading Time: 1 minute Yesterday I had my PICC line placed. They told me no heavy lifting or stress on the arm for a week. So ok: no lifting Juno out of the Xterra, no lifting the crate or big boxes. No push ups or weight lifting. Not that I do either of those now anyway.  I was considering […]

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Take a Bite out of Lyme

Reading Time: 4 minutes If you've been watching me on social media, you'll know I posted a few photos for the Take a Bite out of Lyme Disease Challenge. Obviously, I had to take part in this challenge as the disease has totally stopped my life in its tracks. But here's the thing that I don't think a lot […]

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Liquid Gold

Reading Time: 1 minute They say fighting chronic lyme disease is a colorful experience. In some cases, it's atomic.

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A Lived Life

Reading Time: 4 minutes For as long as I left this blog limpling along at one or two posts per month, it seems like a daunting task take on a  project that has a daily due date. But I'm tired of waiting to recover. I'm tired of not being able to live my life because I never know when my health […]

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Lymecentricities

Reading Time: 1 minute “How are you doing cognitively,” asked my doctor. “Well,” I replied, “I used the cordless vacuum to do a quick pick-up of dog hair in my bedroom the other day. I vacuumed most of the room before I realized that the dust canister wasn’t installed.  Then it took me 30 minutes to find the canister. […]

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Economizing Gut Health and Dog Treats: Part 1

Reading Time: 12 minutes What do you mean, Poppy says you can’t buy us anymore treats? What did we ever do to him to deserve that kind of punishment? I know what you’re wondering Internet: What does economizing, gut health and dog treats all have in common? Hold on to your hats because I’m about to show you how […]

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This Side of Normal

Reading Time: 6 minutes   I've been thinking a lot about returning to normal lately and constantly wondering what normal will be for me in recovery. After all, I haven't really been "normal" in a decade. I think the first thing people wonder about someone who's gone undiagnosed with a chronic disease for as long as I have, or […]

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Bad News Good News

Reading Time: 3 minutes The bad news is, I caught a cold. The good news is, after 9 years of not having a cold or a flu due to a broken immune system, I caught a cold! Wait! What?  I know, it's hard to see the silver lining. But really, it's great news that I caught a cold because […]

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Dingo Bells

Reading Time: 3 minutes Long time readers will recognize this month's masthead from December 2009. I took a short cut and repeated one of my favorite cracker and criminal holiday adventures. As usual, Lyme and Co-infections company has left little in the bank for creativity. But the good news is, I'm getting closer to recovery. I swear internet. With […]

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The Layers of Lyme

Reading Time: 6 minutes Mr. Wild Dingo sat in the kitchen watching me prepare dinner. He claimed he changed his routine from working in the office to the kitchen so he could spend more time with me. Knowing his passion for the economy of motion, I suspected it was easier for him to stay close to me rather than jump […]

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The More He Saw, The Less He Spoke

Reading Time: 4 minutes A wise old owl lived in an oak The more he saw the less he spoke The less he spoke the more he heard. Why can't we all be like that wise old bird? ~ Oxford Nursery Rhyme¹

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Brought to You by the Letter B

Reading Time: 2 minutes This month's masthead is brought to you by the letter "B."  B is for butterfly, bee and bull thistle.  I could watch nature's co-workers for hours as they each take what they need from the thistle. As long as I didn't have to move much.

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Where the Hell are my Wings?

Reading Time: 3 minutes If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.”  ~ Martin Luther King Jr. A flock of brawny pelicans soar the sky above the sea one evening. I'm feeling weak and my headaches have returned. All […]

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Hard Core

Reading Time: 3 minutes A few weeks ago, the cracker, the criminal and I had a fantastic 6-mile hike, climbing up 1500 feet. Yes, it's true. I'm getting a lot better.  But I still have a long way to go. I'm functioning anywhere between 30-40% my normal level. And while a 6 mile hike may seem like I'm fully […]

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A Game of Inches

Reading Time: 3 minutes Anyone can end up in hell: by the choices you make or by the luck of the lottery. Since nobody's going to reach in to pluck you out of hell and plop you into paradise, you have two choices:  stay there and be miserable or claw your way out---one inch at a time. That clawing […]

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Standing Still at Warp Speed

Reading Time: 2 minutes Sometimes I feel like Lyme disease is a black hole and I'm standing on its event horizon. Petrified, yet consumed with its mystery. My feet too heavy to move from the crushing grip it has on me. One second of my life spent frozen on the event horizon and a life time of the world […]

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That Irritating Virtue

Reading Time: 2 minutes Patience. It's about the only thing in this house that's been getting any exercise lately, by human or canine.

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It's Like Beating My Head Against a Fog Wall

Reading Time: 5 minutes It was a warm, fall evening in Santa Cruz as Mr. Wild Dingo and I walked the dogs along the beach.  The usual sunset over the sea's horizon was gone and instead a dense wall of fog rolled in. Though it was windy, it just sat there, motionless, blocking the sun set from above. I just started to […]

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Better Days

Reading Time: 3 minutes "Princess, why is Mom so darn whiny and slow? She's got a total handicap with those big wheels. Geesh." "Big boy, your guess is as good as mine. She looks totally healthy and fine to me." Lyme Disease is nothing if not deceptive and a complete mind-f*ck.

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The Enemy

Reading Time: 7 minutes Meet Borrelia burgdorferi. Otherwise known as the spirochete bacteria that causes Lyme Disease. It's what has been setting up shop, wreaking havoc and thriving stealthily under the standard diagnostic radar for 8 years in my body. To be honest, Internet, I wasn't going to even mention this because when I first heard "Lyme," I thought it […]

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Eight years, 25 doctors, no diagnosis. Five infections, missed. One immune system, shattered. Forty medications and 20 herbs and supplements, consumed daily. Two years of IV and needles, daily. Eight alternative therapies. Five years in treatment. One retirement plan, depleted. Thirteen years of life passing. Eighty-percent recovered. Twenty percent nuts. This is Lyme Disease. This is my story.

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