Early Cherry Blossoms -356/365
CVID, Common Variable Immunodeficiency. Another fallout from complications due to Lyme disease. When researchers say Lyme disease is AIDS-like, this is what they mean. Basically I don't make antibodies as a normal person. Researchers don't know the exact cause, but think it's partly genetic and partly from opportunistic infectious disease. My immune system showed suppressed (via tests) before Lyme disease treatment began and it hasn't come back on line yet as I wind down antibiotics. A pre- and post- Pneumovax vaccine titer test should show a spike in a normal person's immune response weeks after the vaccination.
My immune system was all, "Whatevs. I'm just gonna do nothing."
I have no idea what this means for me for long term, if my immune system will be permanently this way or if will take some time and come back on line. Either way the good news is, my insurance company finally approved pricey/risky IV IG treatment (replacement of IGG antibodies via IV) for 11 months. The bad news is, I have to go through the approval process all over again next month when I have to switch insurance companies. The good news is, it's only a once per month treatment, not every day. I'm so over being plugged in! The best news is the doc says this should really make a difference in how I feel. A good Lyme doctor doesn't just focus on killing pathogens. A good Lyme doctor uses every tool in his tool kit and treats the whole person as well as teach the patient how to be as healthy as she can be.
Are we there yet?
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