Eight years, 25 doctors, no diagnosis. Five infections missed. One immune system, shattered. Five years in treatment. Two years of IV and needles, daily. Forty medications, 20 supplements, 8 alternative therapies. One retirement plan, depleted. Thirteen years of life passing. Mostly recovered but mainly managing. This is Lyme Disease. This is my story.
Life is is filled with infinite choices. With Lyme disease, your choices are ruthlessly limited. I’m always measuring how many matches are in my book and deciding on how to use them. I don't get to cram in as much as a normal person can in a day. Instead, I basically have to choose one or […]
I should have taken advantage of the rain this winter practicing rain drop photos, but Babesiosis is a bitch. Sometimes I think if it were only just Lyme disease and just Borrelia I had to manage, it would be a piece of cake. I've made tons of progress treating Lyme-MSIDS & CVID these past 3 […]
Is this drop in focus? I can't tell. It took a week for my new Lyme disease medication to arrive. It had to be compounded. I'd been relegated to the sofa. Headaches and vision problems have been, well, a problem for being able to function or focusing the lens of a camera. It’s embarrassing to […]
Thank dog and praise cheeses for these two. They've literally held me together the last few weeks as my health plummeted into Lyme disease hell. Surviving on 2-3 hours of sleep per night and all the other little goodies that come along with Neurological Lyme plus a brand-new infection has been peachy. This election season […]
I used to measure PRs for a run or a bike ride. Now I measure PRs for how long I can stay off antibiotics before Neurological Lyme Disease returns. I had a 5 week PR a few months ago. Then recently a 2 week PR. I think I'm doing this Lyme-athlete thing all wrong. Yup, […]
The first thing Lyme disease does to you is take away your power. I'm taking it back. Lyme Warrior -- Yoga Every Damn Day --- Lyme Disease Awareness Month -- Take a Bite out of Lyme Challenge Fact: There is no place in the body that the pathogen causing Lyme disease cannot live and damage. […]
Today, a personal note on living with Lyme Disease for Lyme Disease Awareness Month. By now you've probably heard so many stories of people with Lyme and their symptoms. Maybe you've heard it brings joint pain and chronic fatigue. Or maybe you've heard it makes people foggy, gives them memory problems and unable to think. […]
If someone told me I'd eventually go Paleo, I would have died laughing. Being gluten-free was hard enough! But after a month of having a Paleo diet, the pain levels in my body keep dropping week to week. Treating Lyme disease is not just killing pathogens. Lymies have to use every tool in the tool […]
It's Lyme Disease Awareness Month Peeps! I'll be posting lots of educational and fun posts related to Lyme disease on Social media and a little on this blog. I thought I'd share an update of my progress along with a macro shot of an unfurling flower frond for those missing my macro photography adventures. I'm […]
It's been roughly 36 months since I started treatment for Lyme disease. I was 36 years old when symptoms first appeared and 11 years later, I'm still battling it. Here are the stats to-date: