What a week! What a crappy, crappy week. I always thought I was really lucky to be one of those Lymies that didn't have it so bad to end up in the hospital, but in the hospital is exactly where I ended up on Thursday.
Eight years, 25 doctors, no diagnosis. Five infections missed. One immune system, shattered. Five years in treatment. Two years of IV and needles, daily. Forty medications, 20 supplements, 8 alternative therapies. One retirement plan, depleted. Thirteen years of life passing. Mostly recovered but mainly managing. This is Lyme Disease. This is my story.
What a week! What a crappy, crappy week. I always thought I was really lucky to be one of those Lymies that didn't have it so bad to end up in the hospital, but in the hospital is exactly where I ended up on Thursday.
Yesterday I had my PICC line placed. They told me no heavy lifting or stress on the arm for a week. So ok: no lifting Juno out of the Xterra, no lifting the crate or big boxes. No push ups or weight lifting. Not that I do either of those now anyway. I was considering […]
If you've been watching me on social media, you'll know I posted a few photos for the Take a Bite out of Lyme Disease Challenge. Obviously, I had to take part in this challenge as the disease has totally stopped my life in its tracks. But here's the thing that I don't think a lot […]
They say fighting chronic lyme disease is a colorful experience. In some cases, it's atomic.
For as long as I left this blog limpling along at one or two posts per month, it seems like a daunting task take on a project that has a daily due date. But I'm tired of waiting to recover. I'm tired of not being able to live my life because I never know when my health […]
“How are you doing cognitively,” asked my doctor. “Well,” I replied, “I used the cordless vacuum to do a quick pick-up of dog hair in my bedroom the other day. I vacuumed most of the room before I realized that the dust canister wasn’t installed. Then it took me 30 minutes to find the canister. […]
What do you mean, Poppy says you can’t buy us anymore treats? What did we ever do to him to deserve that kind of punishment? I know what you’re wondering Internet: What does economizing, gut health and dog treats all have in common? Hold on to your hats because I’m about to show you how […]
I've been thinking a lot about returning to normal lately and constantly wondering what normal will be for me in recovery. After all, I haven't really been "normal" in a decade. I think the first thing people wonder about someone who's gone undiagnosed with a chronic disease for as long as I have, or […]
The bad news is, I caught a cold. The good news is, after 9 years of not having a cold or a flu due to a broken immune system, I caught a cold! Wait! What? I know, it's hard to see the silver lining. But really, it's great news that I caught a cold because […]
Long time readers will recognize this month's masthead from December 2009. I took a short cut and repeated one of my favorite cracker and criminal holiday adventures. As usual, Lyme and Co-infections company has left little in the bank for creativity. But the good news is, I'm getting closer to recovery. I swear internet. With […]