writer, warrior, whack-a-doodle

Lyme Disease Warrior

Eight years, 25 doctors, no diagnosis. Five infections missed. One immune system, shattered. Five years in treatment. Two years of IV and needles, daily. Forty medications, 20 supplements, 8 alternative therapies. One retirement plan, depleted. Thirteen years of life passing. Mostly recovered but mainly managing. This is Lyme Disease. This is my story.

Hello Monday

Hello Monday 183/365 I think this is a crocus flowering shrub. But I can't be sure. I do all my uncomfortable Lyme stuff on Monday's like, new IV peripheral lines or shots. This month I've been back on bicillin shots in the butt twice per week. It's a lot like getting a shot of elmers glue in […]

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The Lyme Disease Bill

A Foxtail Lymegraine 179/365 Yesterday's Lymegraine felt like a thousand foxtails stuck in my brain, in my cheekbones, ears and jaw, then lit on fire. But I still find joy in making photos like this. If you'd like to help people with Lyme disease, and can't donate to ILADS or another Lyme and Tick disease […]

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Accidental Magic

Accidental Magic 174/365 This is not one of my more well-received photos on Instagram. One person even commented "huh?" It was an accidental shot, but I liked it. It's also a great representation of what it's like to have Lyme brain, which has been a little bit more common these days. Things are foggy, unclear. I make […]

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Sunday Herxes

It's been a strange week. After a visit with my doctor, we are giving one last-ditch effort to get rid of the Babesia for good. It's been hanging on much longer than it should. We've been treating it since September of last year, which is a long time to treat this infection.  He doubled my dose […]

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On Fear and Courage

A reader wrote in recently in regards to fighting Lyme. She wrote, “I’m full of fear. I admire your courage and energy.” Energy? Really? Every day I have to drag myself out of bed and muster the energy to do the dog walk. That is usually all it will take to wipe me out. The […]

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Random Lyme Ramblings

It's been two weeks off the IV meds and one of the  strong oral meds for Babesia. I thought being off the IV meds would help me bounce back to my normal Lymie self, but I was wrong. I'm still rediculously exhausted and don't do much beyond walking the dogs. These past 10 years, July has […]

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Going Off Campus

I haven't been to the ocean in a while. I tried several times when I started treating Lyme, but the sun and the reflections off the water set off my neuro symptoms so badly that I've avoided it for about a year now. An odd thing about having Lyme disease is that you don't miss things […]

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I used to count how many miles I could ride a bike, run or hike. Now I count how many pills I can get down each day. Being an athlete and a yogi prepared me for this. Two years ago to this day, I took my first antibiotic and began treatment for Lyme disease with […]

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Hard Truths

This month I marks two years since the beginning of my treatment for Lyme disease. I'm astonished how much the body can take. I just finished a six-week course of IV Daptomycin (Cubicin), a new drug being used for Lyme disease following a successful study done on drugs that help eradicate it completely. Words can't explain how thrashed […]

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Daisies, Not Damocles

I dodged a bullet yesterday. I had an ultrasound to re-check the DVT caused from a PICC line I had in March. The clot had run the length of my arm and part of my chest. It was resolved. As in: gone. Kaput. Vamos. My vascular doctor did not order the re-check. In fact, on […]

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